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Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage, and pers (en Inglés)
Katie Lee Jackson
(Autor)
·
Vicki Owen
(Autor)
·
Pat Wolf
(Autor)
·
Createspace Independent Publishing Platform
· Tapa Blanda
Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage, and pers (en Inglés) - Jackson, Katie Lee ; Owen, Vicki ; Wolf, Pat
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Reseña del libro "Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage, and pers (en Inglés)"
Living the unimaginable, twelve Huntington's disease patients and caregivers share true stories of struggle, devastation, and life-shattering events as they travel the journey that is HD. Along the way, you'll meet ordinary people who develop extraordinary strength, courage, and perseverance as they try to counterbalance the chaos of lives falling apart as HD shows up like an out-of-control wrecking ball. One woman struggles for years to find her biological family, then discovers more than she expected. Agonizing parents watch helplessly as their children endure years of pain, lose every bit of their quality of life, and die far too soon, some from the juvenile form of HD. Couples fall in love, marry, and start their families just in time for this horrific disease to step in and rip everything away, eventually taking their soulmates' lives and leaving them with the knowledge that their children, too, may face the same terrible fate. Witness the strength of these families as they rise to the challenge and advocate to be the last generation ever to live with the horrors of Huntington's disease, a genetic neurodegenerative disease that has often been called the worst disease known to mankind.
